Did the Westminster mile run
Hiking the mount Kinabalu
Say hi to the 26 years old tortoise
Chelsea and Westminster hospital – Dermatology @10am
Blood sample taken for testing to find out the cause of the ezczma concurrently change of skincare products to use the following
- Cetraben cream
- Cetraben ointment
- Cetirizine 10mg
- Alimemazine 10mg
- Mometasone (elocon) ointment
- Dermal 500
further reading : atopicskindisease.com and natinal eczema society
Result will be sent to us by post.
Use this link to check your medications side effects published by Electronic Medicines Compensium (EMC).
11 Feb 2020 (Tuesday)
Eastman Dental Hospital – Orthodontics – 2nd follow up visit @10am. Jaw line improved by 4mm. Another 5mm to go. Next appointment is in 10 weesk time.
24 Feb 2020 (Monday)
GOSH re: scar 10.30am – 12pm. Arrived the hospital at 9 am. Had a breakfast at the caferia and get Amelia to feel relax. The session finished just after 12 noon. A report will be sent out to us and we have to call GOSH for further session in a few weeks.
Local GP – at 2 pm, head to the GP to ask for the blood test result done by another hospital about a month ago. I received the message from the GP to pick up prescription for Amelia related to the blood test result while we were at GOSH. I did not understand what was said in the message to me. Received the report from the hospital to the GP and I still did not understand. The GP staff suggested to make an appointment to speak to the GP and he will explain it better. Bottom line is Amelia will be on a 6 weeks prescription medication and continue thereafter. Prescription already sent to my local pharmacy and will be ready tomorrow or wednesday.
25 Feb 2020 (Tuesday)
Local pharmacy: Went to pick up Amelia’s prescription, was told they have to order it because no GP prescribed this before and also it is a new product. To come back tomorrow.
26 Feb 2020 (Wednesday)
Local Pharmacy : Collect Amelia’s prescription – invitaD3 25,000IU Oral solution (COLECALCIFEROL)
3 doses, once every two weeks for 6 weeks then review with the GP. Must finsih one ampoule each time.
Thereafter, continue maintenance with over the counter prescriptions. I asked which types of over countrer prescription thereafter, the pharmacist said just any type will do. Any questions asked the GP.
Read the patient leaflet on the packet and the same info is published on EMC website. Possible side effects may include:
Uncommon (may affect up to 1 in 100 people)
• Too much calcium in your blood (hypercalcaemia)
• Too much calcium in your urine (hypercalciuria)
Rare (may affect up to 1 in 10,000 people)
• Skin rash
Reporting of side effects: If you get any side effects talk to your doctor or pharmacist. This includes any possible side effects not listed in this leaflet. You can also report side effect directly via the Yellow Card Scheme at: www.mhra.gov.uk/yellowcard. By reporting side effects, you can help provide more information on the safety of this medicine.
28 Feb 2020 (Friday)
Local GP – at 4 pm. Thank God for once we can make an appointment after school so Amelia does not have to leave school early.
GP explained Amelia is deficient in Vitamin D3 and this prescription is separate from her Eczema treatment. If the prescription affect her skin, go back to see the GP. After complete the 6 weeks Vitamin Course, continue maintenance with low dosage of Vitamin D.
10 Mar 2020 (Tuesday)
GOSH called @ 10.55am to discuss the possibility Amelia to attend a workshop organised by 3 heart hospitals in London in September 2020. Parent to attend as well. It would be good for Amelia.
The nurse also discussed the last session report already been sent out. Also to get back to GOSH about next session. To email the nurse to arrange a time for a phone call for Amelia and further session about her scar.
13 Mar 2020 (Friday)
Local GP – at 3.50pm. The medical staff said there was no repeat prescription on file. Amelia’s Epipen for the school has expired and also she requires Apaderm cream. the centraben cream only works when her skin is good.
17 Mar 2020 (Tuesday)
Amelia started to cough and having temperature and she felt very tired and slept a lot. She took paracetamol every 4 hours at home. By 20 March 2020, her mucus started to turn yellow-ish.
Called the GP surgery was asked to call the NHS 111. The NHS 111 waiting time was too long (> 2 hours) due to COVID19. Called the GP again, then they arranged a doctor to call back.
I just wanted to know at what point Amelia shall seek medical help given she still has a leaking valve.
A doctor called back and diagnosed Amelia over the telephone and issued 7 days antibiotic for her chest infection. The doctor delivered the antibiotic medication for 5.5 days because the pharmacy did not have enough stock on 20 March and the rest on the following Wednesday.
Her cough, fever, lost of the sense of smell and taste and feeling weak lasted for about 2 weeks.
20 Mar 2020 (Friday)
10.50am @ C24, non school day and the school has arranged one to one appointment to discuss Amelia’s academic progress. (CANCELLED due to COVID19)
03 April 2020 (Thursday)
Amelia had a nose bleed while sleeping about 11 pm. The cause is unknown.
06 April 2020 (Monday)
Amelia had a another nose bleed while in the shower at about 6.30 pm and she has temperature since this morning.
21 Apr 2020 (Tuesday)
Eastman Dental Hospital – Orthodontics – 3rd follow up visit @ 11.45am (CANCELLED until further notice, letter dated 25.03.2020 received 31.03.2020)
30 Apr 2020 (Thursday)
Chelsea and Westminster Hospital – Dermatology appointment @10.30am via telephone.
11 May 2020 (Monday)
Amelia has skin rash and diarrhoea.
Received a new prescription from Chelsea and Westminster Hospital Dermatology by post but was unable to get the prescription because the prescription slip was not stamped by the hospital. So request the GP to re-issue and picked up the prescription from a local pharmacy.
Elocon 0.1% w/w Cream (Mometasone furoate) 4 weeks treatment and must stop after 4 weeks.
- once a day for 2 weeks, then on alternate days for 1 week, then twice weekly for 1 week as directed. Home treatment started on 11 May 2020.
The dermatologist will review the treatment at a later date.
13 Aug 2020 (Thursday)
GOSH Routine heart review at 2.10pm. RESCHEDULED to 3 September 2020.
3 Sept 2020 (Thursday)
GOSH Routine heart check-up at 2 pm. Had the ECHO and ECG before meeting the Cardiologist. The cardiologist noted from the test results that Amelia has “premature” heartbeat. GOSH has previously fixed this irregular heartbeat with the EP surgery in October 2015. The result of that surgery was successful initially. Based on today test results, the premature beats seems to come back. The Cardiologist suggested Amelia wears a small button like ECG gadget (taped on her skin) on her chest for a week. She can shower with it, no need to take it off.
We would then send the ECG gadget to Zio for analysis. The cardiologist will make contact again if it is necessary for Amelia to have a further test or to arrange another EP surgery. Meanwhile, the cardiologist will also discuss Amelia’s case with the surgeon who performed the EP surgery originally.
As for Amelia’s leaking valve, the result remained mild to moderate and has no change since the last review. The cardiologist will arrange another MRI scan in 2021. The last MRI scan was done in 2018.
Amelia’s next review will be in one year time.
7 Sept 2020 (Monday)
Amelia has a running nose with a bit of cough and temperature. Called the GP, the GP reckoned it was a common cold symptom. She was given ok to attend school. Called the school, the school said student with temperature will be sent home, its the school reopening procedure during this pandemic. So, Amelia rest at home and slept most of the day.
14 Sep 2020 (Monday)
Chelsea and Westminster Hospital Paediatric Dermatology @ 11.am.
- Iron with vitamins and minerals 15mg
- Vitamin D3 25ug (1000 I.U)
- Hydrocortisone cream 1%
- Betnovate cream (1g of cream contain 1mg of betamethasone)
- Epiderm cream
- Elocon 0.1% w/w Cream (Mometasone furoate) 4 weeks treatment then must stop. Started 11 May 2020.
3 Nov 2020 (Tuesday)
Eastman dental hospital appointment at 10am. Goal to achieve 4mm by next appointment.
5 Nov 2020 (Thursday)
GOSH appointment At 4pm with a cardiology consultant re: Amelia’s irregular heartbeat result.
4 Jan 2021 (Monday)
Eastman dental hospital @ 1.30pm. The assessment was good. Starting today only to wear the brace at night.
11 Jan 2021 (Monday)
Face to face appointment at Chelsea and Westminster Hospital @ 10.30 am. The appointment was changed to a telephone appointment the day before due to surging Covid cases in the last week. Amelia’s skin is under control and requests to continue with the existing skincare prescriptions.
22 February 2021 (Monday)
Eastman dental hospital @ 4pm. – X-ray & impression. Appointment went well.
12 April 2021 (Monday)
Eastman dental hospital @ 2.15pm. – Orthodontics
13 April 2021 (Tuesday)
Eastman dental hospital – Orthodontics – emergency appointment, one of the braces’ bracket was broken and causing pain, need replacement. (pasta)
15 April 2021 (Thursday)
Appointment at Chelsea and Westminster hospital @ 10.30 am. The appointment cancelled and rescheduled to 10 May 2021 by the hospital.
10 May 2021 (Monday)
Appointment at Chelsea and Westminster hospital @ 10.30am.
7 June 2021 (Monday)
Appointment at Eastman Dental Hospital @ 14.30 pm
24 June 2021 (Thursday)
Emergency appointment at Eastman Dental Hospital @ 14.30 pm, the braces’ wire bent sideway when she eats her wrap in yesterday morning, the wire was pushing the molar inward causing real pain and she was on ibuprofen. The dentist changed the wire to a thicker one.
6 July 2021 (Tuesday)
Appointment at CLCH Dental @ 12.15 pm
26 July 2021 (Monday)
Appointment at Eastman Dental Hospital @ 13.30 pm
2 August 2021 (Monday)
Amelia complaint of chest pain just before midnight while brushing her teeth. Mum called 111 asking for medical advice. NHS 111 arranged a doctor to call back. The doctor sent an ambulance to pick up Amelia to be sent to an A&E for a thorough assessment.
Paramedics arrived about 3am and assessed Amelia in the Ambulance van. The paramedics discovered complicated heartbeat rhythm and insisted Amelia be taken to St Thomas hospital to be checked by a pediatric doctor. The A&E doctor asked mum for Amelia’s medical history then contacted GOSH registrar on shift for advice. The registrar suggested to bring forward Amelia’s routine review and she was discharged at 6.47am on 3 August 2021.
9 Sep 2021 (Thursday)
GOSH routine review with ECHO and ECG @ 2 pm (Falcon Outpatients).
We had a lengthy conversation about several incidents of unusual heart rhythm warnings while at A&E for Amelia’s severe skin rash in the past. This includes one incident at an A&E where a monitor was connected to Amelia’s index finger while waiting to see a doctor, the monitor was beeping showing heart rate of 162bpm and the nurse came to check on Amelia and pressed something to stop the beeping and the monitor machine beeped again after a short while and the nurse came in to check again and commented “obviously, you (Amelia) are not having a heart attack!” then she turned off the machine. We showed the recording to the cardiologist. This happened in 2019 before GOSH discovered her irregular heartbeat came back.
Reported the incident of chest pain on 2 August 2021 just before midnight. Again, the paramedics discovered complicated heartbeat rhythm and insisted Amelia be taken to St Thomas hospital to be checked by a pediatric doctor. The A&E doctor asked mum for Amelia’s medical history then contacted GOSH registrar on shift for advice. The registrar suggested to bring forward Amelia’s routine review and she was discharged at 6.47am on 3 August 2021.
Mum asked about the level of leakage in Amelia’s valve and can the valve still sustain, if yes then how long until she require a surgery to fix her valve. Concurrently, also asked about the timing and possibility of Amelia requires a separate surgery to fix her irregular heartbeat. The cardiologist suggests further investigation on Amelia’s heart condition. MRI, Metabolic test and A long week ECG monitoring are requested and on waiting list. GOSH will make contact as soon as the equipment become available.
27 Sep 2021 (Monday)
Appointment at Eastman Dental Hospital @ 4.15 pm
Amelia’s orthodontic treatment will complete with further 2 – 3 more visits and each visit with 6 – 8 weeks gap. Discussed the coming MRI scan of Amelia’s heart may require her braces to be removed for the scan. The Dentist is happy to remove it for the purpose.
As soon as the MRI scan appointment date is confirmed, mum is to contact Eastman Dental Hospital to arrange the braces to be removed before her scan.
29 Oct 2021 (Friday)
Appointment at Eastman Dental Hospital @ 3pm.
Note: The dentist called on 28.10.2021 and request to go in at 2pm instead of 3pm tomorrow.
26 November 2021 (Friday)
Appointment at Eastman Dental Hospital @ 2.15pm.